Tuesday, October 23, 2012

Treatment For All

So, I read a very sad story this morning on a friend of mines facebook page. A young man, suffering from Hemophilia passed away on September 20.
He died because he could not afford treatment for a bleed. He died because of money. The thought of this breaks my heart.
If it had been a freak accident or something it would still be very sad but the fact that it was over money is disturbing.
This young Hemophiliac was studying to be a doctor because he wanted to make life better for others.
I've had severe bleeds in my life and the pain was unbearable. The pain he must of went through leading up to his death must of been one hundred times worse than anything I've had to go through.
He must of suffered a long slow and agonizing death. Treatment for Hemophilia is very expensive. Factor concentrates are very affective but can cost up to 10,000 for a single bleed.
I know that we are working on Treatment for All but when you read stories like this, it's obviously not fast enough.

Please read the rest of this story at http://www.mid-day.com/news/2012/oct/231012-mumbai-HC-order-comes-a-month-late-for-student-with-haemophilia.htm

Thursday, October 11, 2012

Wedding Woes

So, I am suppose to be just getting back from a wonderful trip to Newfoundland. But alas, I am just coming off bed rest. The day we were suppose to leave I ended up being in so much pain I could hardly walk. Zane left for his trip and Monday I went to the hospital for a blood transfusion followed by 4 days of bed rest.
It turns out I had a ruptured ovarian cyst and that was the cause of all the pain.
I was really disappointed and really sad. Being home alone was a bit depressing but I was blessed enough to have a few friends and family come and visit and that made it bearable.
Zane had a wonderful trip to Newfoundland. He was there for his friends and said the wedding went off perfectly.
This is not the first time I've had to cancel a trip and I'm sure it will not be the last. It's actually not even the first time I had to miss a wedding.
In the end, the main thing is everyone had a great time at the wedding and I am on the road to recovery.